Living with von Willebrand Disorder Part 1.5
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
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The Beginning – Living with von Willebrand Disorder Part 1
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Clive Smith: I went to Conservative Party Conference to raise the issues facing our members
The Conservative Party met in Birmingham last week for their annual party conference. I went…Read more
Infected Blood Inquiry interim report recommends interim compensation
The Infected Blood Inquiry has this afternoon published an Interim Report from the chair Sir Brian…Read more
Putting Access to Physiotherapy on the Agenda in Parliament
The Haemophilia Society this week brought together key people from the world of haemophilia care…Read more
First Gene Therapy Treatment for Haemophilia to be Licensed
Last week the European Medicines Agency recommended that a license be granted to Roctavian a gene therapy…Read more
European Conference Discusses Better Support For Women
The weekend of 21 and 22 May 2022 saw the second ever European conference dedicated to…Read more
Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies
The Haemophilia Society is part of a group of rare disease charities called the Cell…Read more
Thank you for your support of Ukraine!
We’ve been overwhelmed by your generous support of our Ukraine emergency appeal to help people…Read more
Government needs to publish study on Compensation Framework for people affected by contaminated blood products
The Haemophilia Society, MPs and other campaigners have written to the Government demanding they publish…Read more
Advances in inhibitor knowledge and treatment
Inhibitors are a complication of haemophilia treatment, in which the patient’s body begins to produce…Read more
Success at Talking Red Live
Talking Red Live in York in early March brought together women with bleeding disorders from…Read more