Show your support on Rare Disease Day on 28 February
In the UK there are over 36,000 people with a rare genetic bleeding disorder such…
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A Week In The Life: Jessica
As part of a series featuring staff at the Haemophilia Society, Jessica Bomford, our Public…
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Thank you for supporting our winter appeal!
We’re excited to tell you that our winter fundraising appeal has raised an incredible £47,000. …
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Christina’s Story
“Nobody in my family knew anything about bleeding disorders, when I was born,” says Christina,…
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Gene Therapy for Haemophilia B to be licensed next year
A gene therapy for haemophilia B has moved a step closer to being licensed for…
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Living with von Willebrand disorder, part 6
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Living with von Willebrand disorder, part 5
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Remembering Nigel Pegram
We were very sorry to hear of the recent death of Nigel Pegram, a long…
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CRG PPV application process now open
Would you like to take on a role which can really influence what care should…
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Living with von Willebrand disorder, part 4
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Living with von Willebrand disorder, part 3
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Living with von Willebrand disorder, part 2
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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